The Beginning...
This blog is for the purpose of reflection and expression. In my journey of dealing with the day-to-day struggles of NF, I keep so many emotions and thoughts inside. I don’t want to burden others with my struggles. I even shield those closest to me from these feelings. I want to be strong for them, I desire to be the “fighter” that I have always been because of this condition. In some circles, they call us with NF “heroes” and that is a moniker I am not sure I can embrace easily because I do not feel very heroic. I’ll save that for another post, this post is about the beginning. How my journey with NF began. I am the middle child and only boy of 5 children. I am the only one in my family with NF. I am what they call, a spontaneous mutation. I was young at the time of diagnosis, 6 years old I believe. I recall numerous appointments with my pediatrician due to the café au laits on my torso and other areas. He suspected NF and sent my parents and me to the Children’s Hospital in B...