An Unmasking of Sorts
I have not been faithful as I have intended to be posting to my blog about NF. But that is about to change. I said in the first post that I wanted this to be about advocacy and about my personal journey with NF, as well as keeping others updated on Arabella’s journey. I have a few posts already typed ready to be posted but needed to take a moment to unmask. When I say allow me to unmask, do not misunderstand that statement. I am not implying that I am “fake” or pretending to be OK. By unmasking I mean let me reveal what all is going on. When you deal with chronic pain, with no relief, on a daily basis you learn to live your life as normal as possible. I push through my routine like everyone else. I try hard not to let the pain take over or alter how I do things. But the reality is, it DOES alter how I do things. My normal changes daily. I can reach for something and just the slightest wrong touch of my fingers will send excruciating pain throughout my body. The neurofibro...